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Caregiver Stress

Originally Published: August 11, 2000

Caregivers in the U.S.

According to the Family Caregiver Alliance, nearly 25 percent of American households care for someone 50 or older. Most of the caregivers (76 percent) are women - half of whom also hold outside jobs. In addition, about 20 to 40 percent of all caregivers look after children under 18.

Caring for others can be a demanding task. Often, there isn't anyone to say "thanks" or say "you're doing a good job". Many caregivers don't have any outside help and feel as if they're being taken for granted. Watching the physical or mental deterioration of a loved one and dealing with changing problems in a previously responsible adult can be emotionally devastating.

On average, caregivers spend about 73 hours a week helping another adult. They often help with housekeeping, shopping, and preparing meals - and then perform those same duties at home. Physical care can be strenuous for patients having medical problems or limitations (needing bathing assistance or unable to get out of bed). Caregivers may have little time left for friends, family, or recreational activities.

Caregiving and Health

The stress and demands of caregiving can take a toll. Caregivers may become angry, bitter, or resentful towards the patient or other family members (who may not be sharing the responsibility). In the worst case scenario, a stressed and frustrated caregiver may neglect or lash out against the dependent.

Caregiving spouses have higher rates of anxiety and depression than those with healthy spouses. Caregivers are also less likely to take good care of their own health. Research even suggests the stress associated with caregiving may affect the immune system and reduce the ability to fight infection and disease. A recent "Caregiver Health Effects Study" found caregivers experiencing the greatest levels of stress were 63 percent more likely to die in the next four years than those without caregiving responsibilities.

Health care experts say it's important for caregivers to acknowledge they may need help from time to time. Many community groups offer help, such as adult day care, companion services, home health care, and home meal services. Local Area Agencies on Aging are often good starting points for locating community services.

Caregivers also need to take care of themselves. Balanced meals, exercise, relaxation, and time with family and friends will help reduce stress and keep the body energized. Some caregivers may also benefit from stress management programs or counseling services.

SOURCES: written requests for information ONLY!

Michael Baime, M.D. (featured in story), Internist, Stress Specialist, University of Pennsylvania Health Systems, 1845 Walnut Street, 12th Floor, Philadelphia, PA 19103.

AUDIENCE INQUIRY

For general information on caregiving, contact your local Area Agency on Aging or mental health service agency.

  • American Association of Retired Persons, http://www.aarp.org/caregive
  • Family Caregiver Alliance, 690 Market Street, Suite 600, San Francisco, CA 94104, http://www.caregiver.org

    Many major health care organizations (such as the American Cancer Society and the Alzheimer's Association) also offer advice on caring for patients with specific medical conditions. Check the listings in the blue pages of your local phone book under topics related to Aging, Health Services, and Home Health Care.

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